Tuesday, November 26, 2013

A shot in the arm...

     For some time now I've been debating the merits of further posting to my blog.  Essentially I'm as good as I'm going to be regarding my Cancer treatment.  My last visit with the oncologist bolstered my confidence that this particular colon cancer likely won't re-occur.  My liver is in good shape apparently, and does whatever a liver does without any problems.  I'm not scheduled for anything major, save for a colonoscopy sometime in 2014.  Until then, it's basically dullsville as far as the cancer game is played.

     So what do I write about?  There are of course still some mundane yet medically important aspects, not directly treatment related, but helpful anyways.  For instance, I've never got a Flu shot.  Oh sure I figure I've lived through Cancer and can revert to the stoic 'nope I'm a survivor I don't get the flu (only life-threatening illnesses...)' mentality.  But realistically a short chat with a medical professional (a rather persuasive pharmacist in my case) convinced me of the merits of taking the proactive approach.  Basically if I get sick and cancer comes back (OR if the cancer comes back and I get sick) my immune system would need all the help it can get.   So I opted to get the shot.

     Having never had a flu shot before I wasn't particularly worried about Yet Another Needle in my arm.  I'm stoic, remember?   The pharmacist invites me to get behind the privacy screen where I'm informed that the shot will be high up on my arm.  Easiest thing to do is to simply remove my shirt.   I'm glad for the privacy screen, it means I won't be causing casual passers-by to faint at the sight of my less-than toned "muscles".  Or be blinded by the reflected glare off of very pale skin.   The shot is over in a minute, and I don't bleed.  A comment from the person giving the shot is that men don't bleed like stuck pigs; I guess we're basically all clotting fools.

     The shot completed, my shirt rebuttoned and I'm ready to leave....but..not yet.  Apparently there's a little cautionary note in the pamphlet handed to the 'flu shot-ees' that advises a 15 minute waiting period after receiving your shot.   Hey more waiting in a medical environment.  I'm pretty good at that by now.

     Fifteen minutes later, no fever, no projectile vomiting, no desire to perform  the Lambada, I'm free to go.  Simple. Easy. Quick. Done.  Some people complain that 'the flu shot makes them sick'.  Over the next couple of day I monitor how I feel, and overall I feel healthy  Until the weekend.  When I got sick.  Apparently migraine headaches due to a combination of weather change (it got cold) and not keeping hydrated were my undoing.  The flu shot prevents a bad case of the Flu; it doesn't stop you from being dumb and not taking responsibility for your own health.

     One week later and I'm as good as I usually am (other than a rather humiliating loss at chess to a young lady; who despite not yet being a teenager, is quite talented.  Did I mention I was humiliated?!).  I wonder if there's a shot to make me  a better chess player?  Probably not:  science is good but I'd need a a Miracle!


Sunday, October 27, 2013

Protocol visit 2/2

     My post-cancer protocol calls for two visits a year to my Oncologist for general check-ups.  My first was without incident and my second would require a CT exam.     The exam occurred in September, and here in October, the day after Canadian Thanksgiving finds me at the Cancer Centre once more.

     Even though it's six months between visits, I still remember the procedure to follow:  stop at the main reception, get paperwork.  Next, go to a registration kiosk and  perform the ESAS survey (No Pain, Yes I was tired cuz I work all day, yes I'm anxious cuz I'm in a Cancer Clinic...).  Print survey results, hand paperwork bundle to another receptionist. Wait......

    Soon I was called in by the nurse, and the preliminary weigh-in (187 pounds) and some general questions about my health were recorded.   I was led to another exam room and asked if there were any specific issues I would like to discuss -not this time.  My nurse said that the doctor would be in soon.   Which meant I could open up my Android Tablet and do web surfing to occupy my time.

   The Oncologist arrived just as I was able to log on to the Hospital's public internet.  With my Chemo Chronicles Blog page on the screen (what else would I want to read at the Cancer Centre?!) I  offered my doctor a chance to see what a patient writes about the Cancer experience.  She accepted and spent a few minutes reading my last entry, detailing the CT I had the month before.

     I learned something that Oncologists who read that they 'Poke and Prod' a patient are actually performing a Clinical Examination.  But then she called me a WIMP.....

    It seemed that she was (mildly) amused at my description that the Worst Pain of  a CT is the bandage removal (hey it left a red mark and everything!  ) So my thoughtful,  caring medical professional used one of her numerous medical definitions to classify me as a "Wimp".   She's not wrong however.

  The Good News is that the CT of the liver showed no problems.  Nothing in the CT to be concerned about in general.  Although she did not have the CEA results from  my blood work it is unlikely that the numbers, which haven't changed in several years would spike up in the past few months.   I was extremely relieved at this news, and I could probably amend that ESAS report for 'Anxiety = 0'.

  Some discussion that in the next year I would have my three year Colonoscopy follow-up.  But that's routine by now  (Been there, done that, got the Johnny Shirt).   She mentioned that rather than a CT there might be an Ultrasound (I've had a few CT's now, more than I ever wanted).   However the big takeaway from this session is that the Cancer likely won't reoccur. 

     I left feeling satisfied,  with more confidence that 'The Big C' and I are done with our dance.   One more year remains according to the protocol I'm following.  One more year of quarterly blood tests and maybe one or two visits with my Oncologist.  Should  all the result be good, there's every reason to believe that the Cancer Centre and I can go our separate ways.  

Friday, September 27, 2013

YACTS -Yet Another CT Scan

     September 9th and I'm ready for my latest CT scan.  I've got my cell phone turned off because that's what the sign in every Hospital waiting area requires.   However my wi-fi enabled Android player is on.  And  my wi-fi enabled eReader is looking for hot spots.  Fortunately for the Hospital, I didn't bring my Netbook or Tablet!

     Back in May I did the first of two visits required by my post-cancer protocol.   During the prior visit I was basically poked and prodded by my Oncologist.  For the upcoming visit, I would need something more "medical-ly" ("medical-ish"?):   a CT scan.  CT exams have the remarkable ability to peer inside a human body by blasting it with radiation.  The downside of course is that they blast you with radiation.   Apparently Protocol required I get Yet Another CT Scan.

     A letter from the Cancer Centre  arrives, with details  indicating the date and time of my CT.  I'm instructed to have blood work before the CT, outside of my normal quarterly procedures.   I would also have to purchase the whimsically-named "Redi Cat" contrast drink.  Foremost was a requirement that I call the Cancer Clinic and report that I had received and read the letter.  Which I did and a question arose:  Did I really need to drink the Redi Cat.  I was pretty sure I didn't last time (or was it the time before? I can't remember -hint: RECORD EVERYTHING!)    The person on the other end of the call made some inquiries on my behalf, and they decided I didn't need to drink liquid chalk after all.

     I avoided the busy Clinic day that would surely occur on the Tuesday following a Labour Day weekend, and my cleverness to go mid-week for blood work was rewarded with a 15 minute in-and-out process.  All good, everything clicking along like clockwork so far.  My CT was on the following Monday.  I am not worried about CT exams, veteran that I am, it's just that if you keep looking I suppose you will eventually find something.   I'm not keen on surprises anymore.

    I am not supposed to eat or drink four hours prior to the exam.    So you change your morning routine, you skip breakfast, you skip that morning cup of coffee.   You also need to be at the hospital at least 30 minutes prior to the start time of the procedure.   Although a CT occurs in Diagnostic Imaging, the first place you go to is Admitting.  In Admitting a pleasant lady asks me for my OHIP card, my address, and why I'm in the Hospital today.   My responses earn me a smile and a piece of paper.   I then walk  over to Diagnostic Imaging, where I hand this paper to another smiling  lady.   In return the smiling Diagnostic Imaging lady hands me a pager.  This device will flash it's lights when the technicians are ready for me.

     I  can't get comfortable sitting, so I stand up and pace about.  I'm always cold in the Hospital.   I am hungry and really thirsty.   As if reading my mind, a clerk asks if I've brought my Redi Cat drink.   I'm sure the clerk has seen bewildered and uncomprehending looks on patients faces before.  But she's never seen my look of bewilderment.   It appears that I misunderstood the requirements:  I needed to drink the RediCat.  Technically I was supposed to drink some before I arrived, and then drink the rest  just prior to the exam.   I was mildly reproached that the Hospital runs the examinations, not the Cancer Clinic.  Since I hadn't followed the proper preparation the scan couldn't be done at the scheduled time, but I was presented with two options.

     The first option would require rescheduling the exam (and buy the RediCat in advance).   The second option would require I drink an elixir kept in the Vault of Terrible Tasting Concoctions just for people like me.    I chose to drink the Terrible Tasting Concoction.   After that I would be required to wait another full hour before  they could examine me.      

     The drink wasn't that bad, and helped to reduce my thirst a bit.    I only had another hour to wait, but it would be a miserable hour.  I was cold and kept standing up and moving around.  I couldn't get comfortable.  My attention span is measured in microseconds, so lugging 8 pounds of electronic  gadgets with me wasn't my best idea.   Eventually all annoying things come to an end and my pager went off,  displaying the room location I needed to be at:  Room Zero.

    Room Zero is the preparation room where an IV is inserted.   While the CT shoots radiation through you a contrast material is pushed into you via the IV during various parts of the CT scan.  This contrast material interacts with the contents of the Terrible Tasting Concoction I drank earlier and when hit with radiation produces a Warhol-esque picture of your insides.  I would microscopically glow in the dark.  From the inside.

     Earlier in the week I had blood work.  That day I also received my montly B12 shot.  The IV I was about to receive would be the third puncture in the Injection Triad.  It's not the needles, it's not the blood, it's not what they pump into my system, it's the tape that bugs me most.  Tape is used in hospitals to securely fasten IV's to patient's arms so the needle's don't spurt out at critical times.  Like in the middle of a CT.  Therefore the tape needs to be strong and adhere well to skin.   Which means peeling it off will remove all the hairs between the tape and the skin.  And probably some of the skin as well.  It will also leave gummy gray residue for days that neatly outline where your bandage once resided.   But it's only tape.

     The exam is routine by now.  I remove anything metallic from my  pockets.  Since the exam is my midsection  I simply have to lower my pants.   A light cover is provided for my modesty.  Which is pointless given that a CT looks though everything.  I still take the blanket.  The technician has me lie down on the table feet towards the entry tunnel of the CT device.   My IV port is connected, ready to receive the contrast injection.  My arms are flat back.  I'm completely streteched out, looking upwards.  The table begins to move towards the entry.  I always close my eyes during this exam...

     A voice comes over the intercom telling me to take a breath and hold it.  The table moves out of the ring and I'm instructed to breathe normally.  The contrast injection is next, the voice makes the same breathe-and-hold request.  I can feel the warmth of the liquid as it's infused.   I'm warm around my ears, my neck and my lower butt.   Fortunately it's not what you might think and after another pass through the ring my exam is over.   The IV is removed, and that industrial Hospital tape covers the site.  I get to pull my pants up and go home.

    After these exams I'm always wound-up, thinking that every phone call might be from the Cancer Clinic, saying they found something.  As days turn into weeks with  no such call,  I finally return to normal.  Or at least my version of normal.

     I won't know my results until I meet with my oncologist in October.  It's only a few weeks away.   The vague worries  I periodically experience are probably the same for every Cancer patient after a test.  But I feel OK right now.  And that's good enough to live with.

Sunday, August 18, 2013

Soggy weather

     July was not really interesting, either as a month or medically in my life.  For most of July It rained or was hot, and frequently it was both.  But medically it was boring.

   I would do the quarterly blood work for my post-cancer protocol.  There would be no follow-up  phone calls indicating a problem.   I would see my family doctor to get my Crestor prescription refilled.  Aside from 14 hours of fasting, there was no issues with that blood work either.   And I would get an x-ray of my left hand, because I was complaining of soreness.

  It's probably arthritis. It's probably nothing.  It's probably the fact that I'm over 50 and hyper aware of my aches and pains.  The cancer may be gone. It's probably gone, but the doubts remain.  So now every little ache leaves me wondering if it's something dreadful working it's way back into my life.  Am I to be forever scared? 

  So July passes to August,  my tests are all negative, and I'm scheduled for more tests:   a CT scan in September.   Then a meeting with the Oncologist in October.  My monthly calendar arranged by  medical reviews.  I promise myself to watch my diet and exercise 'more often'.   My entire exercise regimen consists of walking or bike riding.   My 'gut feeling' is that my health is best served monitoring my caloric intake first before  trying to sweat it off. 

  I don't have any fun medical things planned for August.  The last bits of my Cancer Protocol  seem to be winding down.  The more boring medically, the better life is.  Pretty soon there won't be anything left to write about, and my blogging "daze" will draw to a close.  Then I can spend all my time doing much more useful things, like complaining about what soggy weather we're having.

 

Wednesday, July 10, 2013

Every walk is important

     Idyllic spring weather for me consists of days that are not too warm, skies that don't threaten rain, and evenings with a view of the moon and stars.  On June 21st I shared just such a day with hundreds of others during the 2013 edition of the Canadian Cancer Society's Relay for Life.

     Relay for Life is an annual event held in numerous locations across Canada.   Their goal is to raise money for Cancer research.  Their ideal is to erase Cancer as a disease.  Throughout this twelve-hour event,  they honour those who made it through their ordeal, and  reflect on the ones who have passed.   Their creed is summarized as:

     CELEBRATE - you are a survivor!
     REMEMBER  -  in honour of the ones we've lost
     FIGHT BACK! -  and help other so they don't have to suffer

     Early in my post-cancer period I had visited the Relay For Life  as a spectator.  During those occasions  it was to remember the passing of my parents.  Naively I had assumed that I needed to be "five years cancer free" to be considered a survivor.  Nothing so formal is required:   being alive and fighting Cancer makes you a survivor as far as I'm concerned.  But I wanted something definitive to tell the world --and myself-- that I was done with Cancer.   What I hoped to get was door-slamming, "In your face, Cancer!" closure.   So I signed up to do the Relay for Life Survivor Walk.

     The process begins with registering on the Canadian Cancer Society's website.   As a survivor, you are not required to pay an entry fee, and your yellow T-shirt says "Survivor" on it.  I'm not particularly fond of yellow, and the primary colours of my wardrobe are White, Black, Blue and Gray.  In particularly flamboyant moments I've been known to for the 'daring' earth tones of Beige and Green.   On this day however I am  resplendent in Daffodil Yellow:
Windsor/Lasalle Relay for Life, June 21, 2013
     I can truly say, "Been there, walked that, got the (survivor) shirt."

     In the weeks leading up to this particular event I would casually mention that I would be walking the Survivor Lap, as the inaugural lap is called.  What surprised me was the enthusiastic offers of people willing to pledge.  I did not wish to solicit sponsorship at this time, as I had distinctly mixed feelings about my motives for this event.   It is difficult to articulate, but suffice to say this was something personal between me and Cancer.

      On the event day itself I was eager to get going, to be among other survivors to hear what they had to say, to share this intensely personal experience with others who just know what you've gone through.   Upon arriving at the Relay site,  we received VIP treatment:  preferred parking for Survivors, so we didn't need to walk the approximately 17,000km from parking lot to the venue.  

      More pleasant surprises, the registration had a novelty 'hand tracing' banner.   All survivors were encouraged to trace their hand, as a sort of group High-Five I suppose.   During the event it would precede the walkers, carried forward by willing volunteers.   Speaking of Volunteers if you've got some spare time and are looking for a cause, I'm sure the CCS would be interested in hearing from you.

      Supper was in that fine Summer tradition of  hot dogs, hamburgers (or veggie burger in my case), pasta and salad, coffee and dessert.   Cheerful volunteers served us in picnic-buffet style.  I had lost my  ticket entitling me to a free dessert shortly after registration.  But I suspect the un-missable "Survivor"  caption on my shirt got me a yummy treat anyways:  cupcakes that were tasty works of art.

      To my way of thinking, the Relay For Life bears a similarity to a Wedding reception.   Both have lots of guests.   Both feature enthusiastic participants.  Both have lots of food and entertainment.  And finally, both have lots of after-dinner speeches.    As I was in the group that was to kick things off, we were semi-sequestered far from the stage where numerous officials, politicians, community leaders, fund raisers, and CCS representatives talked at length about why we were all here.   Though I missed most of what was said, my observation of the audience tells me they liked what they heard.   Speeches completed, the Knights of Columbus would be the honour guard as the walk commenced. 

      By tradition, the youngest survivors lead the walk.  They may be kids, but thanks to events such as the Relay For Life,  they are kids with a future.   Flanked by the K of C honour guard, we proceed with that inaugural lap.   I'm aware of how proud I feel to be here.  I'm startled out of my introspection when I suddenly realize that everyone wants to  high-five the survivors as we walk by.   Little kids reaching way up, eager to do their share to help us Survivors.  I'm happy to oblige and make sure I slow down to gently tap  small palms.  Victory assured, I keep walking.

      I walk fast.  I suspect that to some observers I might have appeared somewhat over-eager.  Initially the walk started out solely as Survivors.  Halfway through the Care Givers were permitted to join in.  As my first Survivor Walk drew to a close, I tried to figure out how I felt, if I had a better understanding of what I had gone through three years ago.  But it was just a walk,  shared with some nice people.    My hoped-for  closure did not manifest itself.  There wasn't any over-the-top emotional spillover.   I think I've  had enough cancer-related emotional drama for a lifetime.

      Yet I can't deny it wasn't uplifting to participate in the Survivor lap.  I had set out three years ago with a plan to get through treatment and return to work.  I reached my objectives and was satisfied.  I thought perhaps the Survivor walk might invoke a feeling of sadness for a life so changed.  But no tears from me at this time.  Later that evening however,  I would be emotionally ambushed  during the Luminary Ceremony.  

     Perhaps the most intensely  moving experience of the this twelve hour evening event is the Luminary Ceremony.  At its core it is  a simple thing, a white bag that wouldn't look out of place if it contained sandwiches and an apple.  Within this flameproof bag however is a small votive candle.   Upon these bags are written  the names of those we need to remember.  The names of those that may be going through their journey.  The names of those that made a difference when your life changed forever.   There are thousands of these little white bags, some, plain and unadorned (like mine), others cheerfully decorated.   Some bearing photographs or prayers.  Some are works of art.  They are all paper shrines with emotional bonds stronger than forged steel.

      As dusk approaches, prayers are said for those who have passed, and we observe our moment of silence.  I think of family could not be here this night.  Of coworkers and friends who were abruptly taken away by cancer.  Twinge of guilt for not being among their number.   Twilight no more, night is about us.  A moon close enough to be called full is rising.   The Luminary candles are lit,  while  the piper stirs within us that haunting sadness  whenever  "Amazing Grace" is played.   A ribbon of light encircles the field.   I walk around the track to find the two Luminaries reserved for my parents yet unlit.

     I cannot get to the luminaries reserved for my parents.  A woman sitting perfectly still blocks access to  them.   I cannot see her face, nor determine her age.   I presume that her luminaries are adjacent to the ones for my parents.  Another woman approaches, dressed in the same uniform as her seated teammate.   She kneels beside her friend,  maybe sharing in grief, maybe consoling her, I do not know.   There is no sound of crying,  but the shoulder-wracking sobbing is unmistakable for it's anguish  .  At that moment I'm profoundly saddened for her loss.  Self conscious now that I'm wearing a bright yellow shirt boldly proclaiming "Survivor".   Not wishing to intrude on this intense event, I quietly move away.   I do not wish to meet her eyes if she should look up.  How would I answer the unspoken question of why one survived, and one did not? 
         
      I continue my walk that evening with conflicting emotions.   I'm proud for meeting my life's toughest challenge,  but humbled by a stranger's grief.   There would be no cathartic release for me this evening, no feeling of joy at 'beating' cancer.   The walk did not release me from Cancer's hold, any more than it could erase other painful memories in my life.   Although my expectations of closure were not fulfilled, I did  not leave disappointed. 

     I guess what I learned from this event was  that in order to celebrate my life I don't need any grand gestures.   Whenever I want to explore life,  I just need to open up my front door.  And go for a walk.  

Tuesday, June 4, 2013

Protocol visit 1/2

     It's now May 2013, two years 'cancer free', and my post-cancer protocol has me visiting my Oncologist twice a year.   I'm somewhat anxious as I step once more into the Windsor Regional Cancer Centre.   Although I'm no longer receiving treatment, there's a twinge of anxiety when I sit down in front of a terminal to enter my health survey.   First challenge:  remembering my password.    Once logged-in I answer queries about my health in a mechanical, perfunctory fashion.  All the answers are scored on a scale from One to Ten.  Most of my answers are on the low-end of the scale.  I'm  telling the computer that basically everything is OK.   I hope I'm right, because shortly my name will be called and I'll be brought to the exam room.

     First there's a matter of stepping on a scale.   I divest myself of cell phone, wallet, keys, eReader, android device, pens and pencils, loose change.  I didn't bring my back pack with me this visit, 'cuz I didn't want to bring too much stuff...   I briefly consider removing my shoes, after all, I want to be accurate with my weight right?   I weigh-in at 186 pounds, not too bad.   It takes me a while to get all that junk back into my pockets, and then I'm shuttled to the exam room.   As the doctor walks in I realize that an exam requires that I be lying down on the  table,  which means I have to empty out my pockets. Again.

     My nice Oncologist lady sees the eReader I'm removing from my pocket.  A Kobo-Mini, very nice compact little device.   We chat for a couple of minutes, she smiles at my enthusiasm for electronics gadgets -boys and their toys.  Now the toys go back out of my pockets and onto the chair.  I get on the exam table.

     Although my primary cancer was in the Colon, it had spread to the liver by the time I was diagnosed.  Surgery and chemotherapy and a lot of support helped me recover.   My Oncologist is performing a follow-up check on my liver looking for whatever symptoms mean bad things might be happening.   Apparently the process of meticulous abdominal probing involves tickling the patient.   As the exam continue I am required do take deep breaths.   She's apparently satisfied that my lungs do what they should be doing.  And we're done.

    Once more I shovel all that hardware back into my pockets. My Oncologist is pleased that things are going well, and she reminds me  to keep going for the quarterly blood work.  I'm to be scheduled for yet another CT in September.  Note to self:  ask the doctor how many CT's are too many?

    Overall I'm relieved;  you can't help but feel happy walking out of a Cancer institution with no strings attached.  Or an I.V. tube.  It's the little things that make a difference.

     A day after my recent visit with the Oncologist,  I get a phone call:  my CT appointment has been scheduled for September.  I'll go for my blood work sometime in July.   However before any of that happens I register for the  Relay For Life :  I've decided to  join in on the Survivor Walk this year. 

     So this June I'll join with other survivors, walking  the inaugural lap of the all-night Relay.  I'll walk to show that having Cancer is simply part of the journey through life.  I'll walk and remember where I've been and how far I have yet to go.  And I'll get there, one step at a time.
    

Friday, May 10, 2013

The Month of Yellow Flowers

     This April 2013 marks the 75th anniversary of the Canadian Cancer Society.   April is also the month to wear a Daffodil, the yellow flower used to show support for those whose lives have been touched by Cancer.  Even though I've been through the whole "Cancer ruined my day" thing, I never had direct experience with the CCS until recently.

     During the prior month of March I wrote about the joys of getting tested for Colon Cancer at the request of the CCS.   Given my history, how could I refuse?  A complete surprise however was the subsequent invitation by the CCS permitting me to be present for the announcement of a new research program targeting Brain Cancer.   Intrigued by the prospect of meeting people actively involved in Cancer research, I quickly accepted their kind invitation.

     So on a cold but wonderfully bright and sunny spring day, I arrive early and wander around the Biology building of the University of Windsor.  The UoW is my old 'alma mater' as a "mater" of fact.  While strolling around the building I run into a group of suit-and-tie types, closely shadowed by folks with formidable-sized cameras being aimed in the direction of the suits. Believing that I've found the promised Tour portion of the program to which I've been invited,  I nonchalantly join in and proceed along with the group as they visit various labs, showing the machines that will hopefully coerce more secrets on how Cancer works.  I meet the Doctor who will be the recipient of the CCS grant and she patiently explains to me how the process is intended to work.    Details may be found here.  Suffice to say that diagnosing a cancer in the brain as a Brain Cancer -and it's subsequent therapeutic treatment -is difficult.  A cancer can be in the brain as a result of a primary at some other area.  Unfortunately it seems that if you treat for the wrong primary, the results won't be good.  Thus the vital need for research of this nature.

     During my conversation with the recipient of the CCS research grant,  it slowly dawns on me that something is not quite what it ought to be.  It appears that this is an official tour for the CCS CEO and staff members.  I've unwittingly invited myself in.  I'm bemused, but that feeling turns to one of embarrassment as I'm called upon to pose in a group photo and I quickly realize I'm suffering from a minor fashion faux-pas.  It wasn't the lack of a tie, or lack of a sports jacket, or even that my dress shoes were more casual and less shiny than my counterparts. No it was when I realized that I was not wearing my Daffodil pin.  Here I was, the veteran (and scarred, I can prove it!) Cancer survivor, amongst the very people who provide researches with the funds to help guys like me.  And I'm not wearing their eye-catching and very distinct logo!
Hey bud, where's your yellow flower?
      No one seemed to mind, and at the promised (and tasty) luncheon there were numerous pins thoughtfully provided for people like me to show support for, well, people like me I suppose.

    The luncheon flew by as I chatted with various folks about their stories,  sharing that intangible camaraderie that only those that 'go through it' seem to have.  I gratefully thanked the  CCS and summarily returned to work, glad to have a peek at what kinds of things are required to do nitty-gritty  bio-medical research.   I'm so glad I'm in I.T.  But my Yellow Flower story did not end there.

     A few days later a package arrives by courier for me.   Inside is a token of thanks from the Canadian Cancer Society:

My own Daffodil pin garden. No watering required!
     April would remain cold and wet and unseasonable for this clime, but I needn't worry.  My Daffodil Garden is full of happy Yellow Flowers reminding me that Hope is always near.

Sunday, April 7, 2013

Third Anniversary

     Saturday March 30th, 2013 was the third anniversary of the day I learned I had Cancer.   Three years later and I'm more or less back to my old life.  The fears are gone (mostly) and I live normally, whatever that is at this particular time.   However I did not spend my anniversary day in quiet contemplation of what I had overcome, nor in celebration of my apparently victory.  Instead I helped a friend, and volunteered at a chess tournament for kids.

    One of the odder results from my brush with a life-changing illness was not so much navel-gazing and introspection (plenty of that during my illness) but a re-connection with something I enjoyed:  playing chess.  During my recuperation I had played a bit and sometimes served as 'chess fodder' for small kids.  I would help out with the occasional tournament, mostly in the "gopher-ing" and "shusher-ing" roles.   I simply enjoyed the experience of helping out with something not about my illness.

    So it was fitting that on this anniversary of 'the news' that I was involved with the playoffs of the Windsor Chess Challenge, a much more pleasant experience.   It was all about the kids and their dreams. 

    As for me, my dreams are just to keep going on as I am, and who knows, maybe even play some chess. 

Thursday, February 28, 2013

March - The Blue Ribbon Month

      Until recently I never associated March with anything tangible.  To me it seemed that March was neither Winter's Ending nor Spring's Beginning.   Then during one such indifferent March,  events transpired that would forever link my life to this particular month.   Just as Winter fades and Spring arrives,  my old life would be replaced, and a new and uncertain one would begin.   Because it was in March of 2010 when I found out I had Cancer.

     My life did not alter significantly that October of 2009 when I turned 50.   There were no epiphanies, no spiritual revelations.  It was just another annual event.  I never felt "my age".    After Christmas that year however, it was a different story.   I was constantly feeling tired, and losing weight.  I assumed it was something that went along with getting older.  I rationalized these changes by telling myself "it's that age thing", and that's just the way life is.

      Normally I schedule my annual physical around the time of my birthday but in 2009 I didn't  -too busy!   Finally  in February of 2010  I saw my family doctor.  Up to this point in my life the annual physical went something like this:
   
     I show up at the doctor's office,  where my weight and blood pressure  are taken by the nurse.  Then I get to pee into a bottle (not as much fun as it sounds).  Next the doctor examines me,  has me get on the exam table and verifies that my prostate is intact.  I leave the office clutching the form to get my blood checked at a local medical lab.  If there's a problem, the lab will notify the ordering doctor, who, in turn, will notify the patient.  I was 50 years old,  and hadn't been feeling that great.  It came as no surprise when my doctor wanted to see me to discuss the results of my blood tests.

     "Are you a vegetarian?"  is not what I thought he'd say when I returned for my follow-up visit.  My tests had shown low iron.  Extremely low iron.    So low in fact that it would seem I was avoiding any food with a hint of iron, thus my doctor's question to me.  I'm not a vegetarian, but to find out what  was causing this result would require more testing.   My next test would take place not in a lab, but in my own home.

     This time when I left the doctor's office it was with an envelope for the Fecal Occult Blood Test . It's an easy test to perform, requiring about the same skills as say, making a peanut butter sandwich.  (Don't blame me if you are hesitant to open up that new jar of PB after this!)   The kit comes with a special foil pouch designed to be mailed.   I performed the tests.  I mailed the pouch.  I got another call from my doctor...

     Blood in  your stool is never good.  The FOBT test showed microscopic blood from my tests.  It needed to be checked immediately.  In order to find out where this blood is originating another test was required:  the much feared and maligned Colonoscopy.

     The prospect of a Colonoscopy divides people into two groups:  those who are 'afraid', and those that are 'afraid, but not so much'.  If you've never had a Colonoscopy, you are automatically in the 'afraid' category.    However there is a way put you into the 'not so  afraid' group:    Get a Colonoscopy.  After that you can truly say:  "Been there.  Done that.  Got the Johnny Shirt".

   As I would learn during my Colonoscopy  there are roughly three aspects for this process:

 You get cleaned out,
 They  put you out,
 Then go in, and look about.

     And so it was that day in March,  my very first Colonoscopy would show that I had a severely constricted colon.   So constricted that the procedure could not be completed.  So constricted that I would not be able to eat solid foods for weeks.  A tumour was threatening to completely block the colon.    Putting it all together:  extremely low iron, blood in my stool,  and a lemon-sized tumour in me.   I had Colon Cancer.  A biopsy and subsequent CT scans would confirm that it was Stage 4.

     Skip ahead almost four years,  and another March looms in front of me.  This time I write not for myself, but to urge those who are 50 plus to  visit your doctor and discuss how easy it is to get checked.   Or you can be like me and ignore the following warning signs:
     If you have a history of Colon Cancer in your family (especially parents or siblings) please make the time to talk to your doctor
         
    I was incredibly lucky.  Despite how it may sound when read aloud, Colon Cancer is the Number Two cancer killer.   However there is an astonishing 90% successful treatment rate upon early detection.

     I dedicate this entry to those folks who are willing to  'March down and put their bottoms up' and get screened for  Colon Cancer.   


     One more March connection for me:  I was diagnosed in March of 2010, and was off work for nearly a year while I underwent treatments and procedures.   It was fitting that in March of  2011  I returned to work and resumed my life, hopefully cancer free.  

    March is the officially designated Colon Cancer Awareness Month by the Canadian Cancer Society.  I would like to thank the CCS for providing their  support and dedication.   And also for this cool logo:

Want to know more about Colorectal Cancer?

      For those who may be interested in the details of what I went through, from discovery through treatment, you may want to start at the beginning.



Sunday, February 3, 2013

Beginning 2013

    Happy New Year!

January 2013 decided that Winter Shall Be Experienced in Canada and my little city was no exception.  I shoveled snow and glumly watched my heating bills rise all month.  Still the season had its moments, like those still, quiet nights where snow doesn't fall so much as drift down, covering the world in a clean sheet of white.  There's a sense of peacefulness as the falling snow sparkles drifting through the diffused glow of the streetlights.

I began my January with a visit to the Cancer Centre's clinic for blood work.    Even thought I'm no longer receiving treatment (last chemo visit was January of 2011!) I still  need to do this on a quarterly basis.  So far the results of these tests show  nothing adverse or unusual to write about.  This blog is positively boring.   I definitely want to keep it that way (although some might argue that you can't change what already is..)

Three years ago my energy was waning, my weight was dropping and I was being engulfed by Cancer.  Now I am in the second month of my Cholesterol medication (Crestor) and attempting to correct the Winter Eating Everything Excesses mode we seem to go through.  I can't afford to treat this as 'mundane' any more than I could the tumour that was growing inside me back then.  To that end I've been attempting to get to sleep earlier (easy to do: I'm Tired), and while it's been too darn cold to walk, I still walk when I can.   And then there's the exercise bike.

I like bike riding, so when it was suggested that perhaps a stationary exercise bike could be used in lieu of retrofitting skis to my existing bikes, I thought "why not?"
Exercise bikes come in all shapes, forms, sizes and capabilities.  They all have one thing in common: their assembly instructions require a Masters degree in Mechanical Engineering and the patience of a Buddhist Monk.  Perseverance, frequent consultation to the "instructions", deep breathing and less than 24 hours after unpacking the box an exercise bike was ready for a spin!

Exercise bikes are not as comfortable as my road bike.  Or my mountain bike.  Mostly because those are sized for me, and my riding position is not as upright as that forced upon me by the stationary bike.  The ergonomics are not the same, but I ride it for about 25 minutes.  The bike features an lcd console which shows distance travelled, speed, and heart rate.   I don't need a panel to tell me I'm doing work, the sweat and tired leg muscles know that already.  The bike is kind of cramped, but it serves to get me off the couch.  Now maybe it they made a bike that was couch-shaped...

January would also see me trundling off to a local library to volunteer with chess tournaments for kids.  Volunteering in things that I've never done before gets me out of my comfort zone.  Winter is too easy to settle in mentally and physically.  While I'm not a novice chess player, I had never really participated in the organizational aspects of *anything* unrelated to my workplace and career.   Set up a Wide Area Network between remote offices, no problem. Assist in data migration from an acquisition, routine.  Dealing with dozens of small children playing Chess makes me think fondly of the serenity associated with assembling Exercise bikes.

For the most part the kids tolerated me (actually they pretty much ignore me, except to report scores and wait for the medals to be handed out) and I didn't  muck things up too badly.  I suspect that as long as I only double the workload of the organizer I'll be asked to hang around for future tournaments.

So January passed with the tempests of the season roaring in.  Tempests do not last forever, the cold days will warm up.  Already the sun is seems to be hanging around a little longer, the promise of Spring will be here before I know it.  My life is one of unfinished projects at work and personally.  But no cancer.  If I made New Years resolutions it would be to live my life without worrying about 'what if', and think more about 'what now'.